Chair

Yann Joly

McGill University

Data sharing initiatives and the work of the Global Alliance

Bartha Knoppers

Professor, McGill University

Data and bioresource sharing policies: From invisibility to full screen

Anne Cambon-Thomsen

Institut national de la santé et de la recherche médicale

Academic research in genomics: Facing the translation and commercialization policy pressure

Timothy Caulfield

Professor, University of Alberta

Protecting privacy in international genomic research

Mark Rothstein

Director, Institute for Bioethics, Health Policy and Law, University of Louisville

This session will cover topics related to governance and public policy in genomics research. It will address evolving trends in “open science”, including data sharing and privacy challenges. It will also focus on pressures to commercialize research juxtaposed with trends in providing more open access to scientific discoveries. These topics will be discussed in the context of relevant ethical standards, laws, regulations, and governance frameworks.