Session 1: Research Policy in Genomics
Sunday, 19 April, 2015 - 08:30 to 10:30
Chair
Yann Joly
McGill University
Protecting privacy in international genomic research
Director, Institute for Bioethics, Health Policy and Law, University of Louisville
Data and bioresource sharing policies: From invisibility to full screen
Institut national de la santé et de la recherche médicale
Academic research in genomics: Facing the translation and commercialization policy pressure
Professor, University of Alberta
This session will cover topics related to governance and public policy in genomics research. It will address evolving trends in “open science”, including data sharing and privacy challenges. It will also focus on pressures to commercialize research juxtaposed with trends in providing more open access to scientific discoveries. These topics will be discussed in the context of relevant ethical standards, laws, regulations, and governance frameworks.